From: A Disease Register for ME/CFS: Report of a Pilot Study
 | All Invitees | Not accepting Invitation | Disease Register Participants | |||
---|---|---|---|---|---|---|
 | No. cases | % total (95% confidence interval) | No. cases | % total (95% confidence interval) | No. cases | % total (95% confidence interval) |
Sex | ||||||
   Male | 42 | 19.4 (7.2 - 31.7) | 8 | 14.3 (0.0 - 39.0) | 34 | 21.3 (7.2 - 35.3) |
   Female | 174 | 80.6 (74.6 - 86.6) | 48 | 85.7 (75.6 - 95.8) | 126 | 78.8 (71.5 - 86.0) |
Age group | ||||||
   < 25 | 26 | 12.3 (0.0 - 24.8) | 6 | 10.7 (0.0 - 36.0) | 20 | 12.5 (0.0 - 27.3) |
   25-44 | 73 | 33.8 (22.7 - 44.9) | 23 | 41.1 (20.6 - 61.6) | 50 | 31.3 (18.1 - 44.4) |
   45-64 | 132 | 61.1 (52.6 - 69.6) | 32 | 57.1 (39.6 - 74.6) | 100 | 62.5 (52.8 - 72.2) |
   65+ | 6 | 2.8 (0.0 - 16.2) | 1 | 1.8 (0.0 - 29.3) | 5 | 3.1 (0.0 - 18.7) |
Ethnicity | ||||||
   White British | 157 | 72.6 (65.6 - 79.8) | 12 | 21.4 (0.0 - 45.1) | 145 | 90.6 (85.8 - 95.5) |
   Other | 12 | 5.6 (0.0 - 18.8) | 1 | 1.8 (0.0 - 28.3) | 11 | 6.9 (0.0 - 22.1) |
   Not stated | 47 | 21.8 (9.7 - 33.8) | 43 | 76.8 (63.9 - 89.7) | 4 | 2.5 (0.0 - 18.1) |
Region | ||||||
   London | 29 | 13.4 (0.8 - 26.1) | 16 | 28.6 (6.0 - 51.2) | 13 | 8.1 (0.0 - 23.3) |
   East Anglia | 81 | 37.5 (26.7 - 48.3) | 15 | 26.8 (3.9 - 49.7) | 66 | 41.3 (29.1 - 53.4) |
   Yorks./Humberside | 105 | 48.6 (38.9 - 58.4) | 25 | 44.6 (24.8 - 64.5) | 80 | 50.0 (38.8 - 61.2) |
   Not stated | 1 | 0.4 (0.0 - 14.9) | - | 0.0 | 1 | 0.6 (0.0 - 16.4) |
TOTAL | 216 | 100.0 | 56 | 100.0 | 160 | 100.0 |