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Table 3 Age and Sex Distribution among Disease Register Invitees, Participants, and Those Declining Invitation

From: A Disease Register for ME/CFS: Report of a Pilot Study

 

All Invitees

Not accepting Invitation

Disease Register Participants

 

No. cases

% total (95%

confidence interval)

No. cases

% total (95%

confidence interval)

No. cases

% total (95%

confidence interval)

Sex

   Male

42

19.4 (7.2 - 31.7)

8

14.3 (0.0 - 39.0)

34

21.3 (7.2 - 35.3)

   Female

174

80.6 (74.6 - 86.6)

48

85.7 (75.6 - 95.8)

126

78.8 (71.5 - 86.0)

Age group

   < 25

26

12.3 (0.0 - 24.8)

6

10.7 (0.0 - 36.0)

20

12.5 (0.0 - 27.3)

   25-44

73

33.8 (22.7 - 44.9)

23

41.1 (20.6 - 61.6)

50

31.3 (18.1 - 44.4)

   45-64

132

61.1 (52.6 - 69.6)

32

57.1 (39.6 - 74.6)

100

62.5 (52.8 - 72.2)

   65+

6

2.8 (0.0 - 16.2)

1

1.8 (0.0 - 29.3)

5

3.1 (0.0 - 18.7)

Ethnicity

   White British

157

72.6 (65.6 - 79.8)

12

21.4 (0.0 - 45.1)

145

90.6 (85.8 - 95.5)

   Other

12

5.6 (0.0 - 18.8)

1

1.8 (0.0 - 28.3)

11

6.9 (0.0 - 22.1)

   Not stated

47

21.8 (9.7 - 33.8)

43

76.8 (63.9 - 89.7)

4

2.5 (0.0 - 18.1)

Region

   London

29

13.4 (0.8 - 26.1)

16

28.6 (6.0 - 51.2)

13

8.1 (0.0 - 23.3)

   East Anglia

81

37.5 (26.7 - 48.3)

15

26.8 (3.9 - 49.7)

66

41.3 (29.1 - 53.4)

   Yorks./Humberside

105

48.6 (38.9 - 58.4)

25

44.6 (24.8 - 64.5)

80

50.0 (38.8 - 61.2)

   Not stated

1

0.4 (0.0 - 14.9)

-

0.0

1

0.6 (0.0 - 16.4)

TOTAL

216

100.0

56

100.0

160

100.0