Table 2 Participants knowledge of their cleft lip and palate (n = 71)
n | (%) | |
|---|---|---|
Age when participants noticed their mouth/lip was different | ||
Pre-elementary school (0–5 years) | 30 | (42.3) |
Early elementary school (6–8 years) | 29 | (40.8) |
Late elementary school (9–11 years) | 8 | (11.3) |
Junior high school (12–15 years) | 4 | (5.6) |
Action upon noticing their CL/P | ||
Asked someone | 38 | (53.5) |
Did not ask anyone | 28 | (39.4) |
Other response/No answer | 5 | (7.0) |
Explanation provided by others upon asking (multiple answers) | ||
Condition name | 11 | (15.5) |
Identified as a malformation | 19 | (26.8) |
Congenital etiology | 28 | (39.4) |
Cause | 8 | (11.3) |
False explanation | 17 | (24.0) |
Age when participants learned the name, cause, and congenital name of malformation | ||
Pre-elementary school | 9 | (12.7) |
Early elementary school | 10 | (14.0) |
Late elementary school | 15 | (21.1) |
Junior high school | 11 | (15.5) |
High school | 4 | (5.6) |
Post-high school (≥19 years) | 22 | (30.1) |
a Manner that participants obtained the above information (n = 70) | ||
Told by someone | 40 | (57.1) |
Learned on own | 22 | (31.4) |
Learned by chance | 8 | (11.4) |