Table 1 Characteristics of children with SCD and their interviewed caregivers
Variables | Did not choose HU | Chose HU |
|---|---|---|
Patients | n = 8 | n = 8 |
Patient age (years) | ||
Median | 13 | 8 |
Range | 5–18 | 2–17 |
Gender (n) | ||
Female | 4 | 3 |
Genotype (n) | ||
SS | 5 | 8 |
SC | 3 | 0 |
Indication for HU therapy (n) | ||
ACS only | 1 | 2 |
Frequent VOC only | 3 | 1 |
VOC and ACS | 4 | 5 |
Caregivers | n = 10 | n = 9 |
Caregiver age (years) | ||
Median | 35.5 | 32 |
Range | 26–67 | 24–45 |
Caregiver gender (n) | ||
Female | 8 | 7 |
Caregiver relationship to patient (n) | ||
Biological parent | 6 | 7 |
Biological grandparent | 1 | 2 |
Other (adoptive parent or family friend) | 3 | 0 |
Caregiver education (n) | ||
<12th grade | 0 | 0 |
High school | 1 | 1 |
Associates degree or finishing degree | 4 | 5 |
Bachelors | 4 | 2 |
Graduate degree | 0 | 1 |
Did not disclose | 3 | 0 |
Caregiver employed (n) | ||
Yes | 5 | 8 |